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Post Polio Syndrome
Many individuals who contracted poliomyelitis earlier in their lives
began to report new health problems that were similar to polio but often
occurring on their "good side". This has been established to be the late
effects of polio but the most accepted name is Post Polio Syndrome or
PPS.
Polio and Post Polio Syndrome
Poliomyelitis is a very old disease the earliest recorded
case was 1580 BC. It is caused by a virus that is extremely stable,
highly virulent and easily ingested by others.
Polio epidemics raged in North America for 100 years killing, paralyzing
and laming children. From 1927 until 1962more than 50,000 Canadians were
known to be infected and thousands died, however Health Canada tells us
actual numbers are much higher.
Dr. David Butler-Jones, Canada’s Chief Public Health Officer has stated:
“If we had never eradicated polio in North America we would not even be
TALKING about hip and knee surgery today as they would be SECONDARY to
the damage caused by polio. It is likely that every orthopedic surgeon
we could train would be too occupied treating the after-effects of
polio”.
Do we still need immunization in Canada today - you bet we do! Polio is
merely ONE plane trip away from us and that means a few hours until it
can arrive and attack those who are unprotected.
An infected person can spread polio from 7-10 days before and after the
onset of symptoms and the virus can be excreted in feces for another
three to six weeks.
REMEMBER - there is still no cure for polio - maintaining a high level
of immunization is the single most effective protection.
What might happen if you get polio? Most who contract polio will have
little or no symptoms at all. For those unlucky ones, the first symptoms
may mimic the flu with fever, muscle weakness, headache and nausea. The
next stage would likely be a stiff neck and back and severe muscle pain.
Finally paralysis! If it is in your legs and arms you cannot move but if
it occurs in your muscles for breathing and swallowing and without an
iron lung it may be fatal.
The summers of those polio epidemics were a terrible time. Everyone was
afraid of polio. Swimming pools and movie theatres were closed and
children were not allowed to take part in the usual summer activities.
When polio did strike and a child was taken to hospital they were then
placed in isolation. Those isolation wards were terrifying for a child
with no parents for reassurance and security. They felt alone and
vulnerable in a world of uniforms, pungent smells and strange machines.
Rehabilitation was long and difficult, learning to stand and walk for a
second time. Most were lucky enough to return home but many would spend
years in the hospital.
Finally, the development of polio vaccines which meant the end of
epidemics in North America and people moved on with their lives. About
35 years after polio there is a new problem, Post Polio Syndrome. The
motor neurons that took over muscles orphaned by polio are failing and
polio survivors must turn once more to canes, walkers and wheel chairs
for mobility while others will again require mechanical help just to
breathe.
We survived polio and now we have to face Post Polio Syndrome which is
permanent and progressive and it is caused by POLIO! Stop polio and you
will also stop Post Polio Syndrome.
Dr. Jonas Salk creator of the polio vaccine said
“Hope lies in dreams, in imagination and in the courage of those who
dare to make dreams into reality.”
PPASS BC proudly salutes Rotary International and their Polio Plus
Program, Centres for Disease Control, World Health Organization, UNICEF,
the Bill and Melinda Gates Foundation, sponsors and governments
throughout the world who have taken on the largest public health
initiative the world has known.
They have dared to accept the task of immunizing the children of the
world against polio. They dream of a polio-free world.
And now the DREAM IS BECOMING A REALITY
POLIO WILL BE ERADICATED!
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Our Mission
The mission of the Post Polio Awareness and support Society of British Columbia
(PPASS BC) is to provide support and information to:
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those who had polio
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family, friends and interested members of the community
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those who now have Post Polio Syndrome so they do not feel overwhelmed and alone
PPASS BC is a non-profit society that is the link to:
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members within our Area Groups
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members and our Board of Directors
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members and the Provincial office in Victoria
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a forum for all people and groups to discuss their situation and how best to deal with it.
At PPASS BC we provide our members with:
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bi-monthly newsletters - PPASS NEWS - containing articles of interest, helpful
- ideas, stories, upcoming events and a central medical insert.
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mini conferences with speakers, presenters, displays and information within
local communities for our members, their families and supporters and the
medical community.
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access to our Resource Center which provides articles, books, audio and video tapes, CDs
PPASS BC brings awareness to the community by:
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providing educational information and presentations about polio and PPS
dissemination of information about the facts, research and treatments available for those with Post Polio Syndrome
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information about assistive devices and helpful suggestions for life
We believe that knowledge is power and PPASS BC will continue to bring awareness to our communities. We encourage members of the medical community to contact us for information about polio and post polio. We strongly support our members and remind them that PPASS BC is there for them - they are not alone.
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